Updated on Friday, October 15, 2010 at 11:50AM by
Elena Taurke
Updated on Friday, June 8, 2012 at 4:50PM by
Elena Taurke
It doesn't show, they started to say after the surgeries. This should have been a cure for shame, and maybe it was, but it also produced a new problem. A deep and integral aspect of my personhood became invisible and unknowable.
Don't look. Juvenile arthritis is a peculiar and defining experience. As a toddler, you get braces and casts instead of the exhilaration of walking. As a kid, you get the special role in the ballet recital. Then, as your wrists are progressively deforming, Phys Ed with its impossible pushups and volleyball falls by the wayside. You are left with the other rejected kids in Choir and then in Drama Club, where, to vanquish your depression, you pledge yourself a career and vengeance. The twist (pardon the pun) in the story is that, along the way, you fall in love with dance--the one thing that everyone agrees is totally out of the question.
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